International Publisher of Science, Technology and Medicine

Journal of Genetic Disorders & Genetic Reports

Review Article

Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life

Deborah A. Bruns*
Department of Educational Psychology and Special Education, Southern Illinois University Carbondale, MC-4618 Carbondale, IL 62901, USA
Corresponding author : Deborah A. Bruns
Department of Educational Psychology and Special Education, Southern Illinois University Carbondale, MC-4618, Carbondale, IL 62901, USA
Tel: (618) 453-6747; Fax: (618) 453-7110
E-mail: dabruns@siu.edu
Received: November 22, 2012 Accepted: January 11, 2013 Published: January 14, 2013
Citation: Bruns DA (2013) Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life. J Genet Disor Genet Rep 2:1. doi:10.4172/2327-5790.1000103

Abstract

Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life

The prevailing viewpoint on children with rare trisomy conditions such as trisomy 18 (t18) and trisomy 13 (t13) is almost uniformly negative. Yet, case studies offer information about long-term survivors. What is missing in the discussion is an unbiased examination of surviving children within the context of necessary, rather than “aggressive”, medical interventions and overall quality of life. A move beyond palliative or comfort care must be an option for this population.

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