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+44 28 3718 0055Journal of Genetic Disorders & Genetic ReportsISSN: 2327-5790
Deborah A. Bruns Author
Subjects of specialization
Affiliation
Abnormal hemoglobins
Department of Educational Psychology and Special Education, Southern Illinois University Carbondale, MC-4618 Carbondale, IL 62901, USA
Biography
Deborah A. Bruns belongs to Department of Educational Psychology and Special Education, intrested in the field Abnormal hemoglobins; Hemoglobin E; Hemoglobin J; Sickle cell carriers; Indian tribe; Chhattisgarh; Endemic malaria from outhern Illinois University Carbondale, MC-4618 Carbondale, IL 62901, USA
Publications
Review Article Subscription
Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life
Author(s): Deborah A. Bruns
Erring on the Side of Life: Children with Rare Trisomy Conditions, Medical Interventions and Quality of Life
The prevailing viewpoint on children with rare trisomy conditions such as trisomy 18 (t18) and trisomy 13 (t13) is almost uniformly negative. Yet, case studies offer information about long-term survivors. What is missing in the discussion is an unbiased examination of surviving children within the context of necessary, rather than “aggressive”, medical interventions and overall quality of life. A move beyond palliative or comfort care must be an option for this population.
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